Day, M., Harris, S., Hussein, D. et al. (5 more authors) (2021) The efficacy of interactive group psychoeducation for children with leukaemia : a randomised controlled trial. Patient Education and Counseling, 104 (12). pp. 3008-3015. ISSN 0738-3991
Abstract
Objective
To evaluate an interactive group psychoeducation programme for children treated for leukaemia.
Methods
A longitudinal randomised controlled study across four UK hospitals with an immediate (N=26) and delay control group (N=32). The intervention covered the pathophysiology of leukaemia, its treatment, side effects and the importance of positive health behaviours. Primary outcomes were parent-reported child health related quality of life (HRQoL) and behavioural difficulties. Secondary outcomes were child-reported HRQoL, cancer-specific HRQoL, child confidence, caregiver burden, and treatment anxiety. Measures were completed pre- and immediately post-intervention, and at 13 and 26-weeks follow-up. Change over time was analysed using multilevel modelling. Acceptability questionnaires rated the intervention on benefits, recommendations, and barriers to participation.
Results
The intervention significantly improved parent-reported child HRQoL but did not have a significant effect on other outcomes. Acceptability of the intervention was high.
Conclusions
This study provides initial evidence that interactive group psychoeducation is acceptable to families and improves HRQoL in children with leukaemia. Difficulties with recruitment removed power to detect effect sizes that are plausible for psychoeducational interventions.
Practise implications
Further studies to explore the potential of psychoeducation to improve outcomes for children with leukaemia and an examination of barriers to participation within this population are warranted.
Data availability statement
The data that support the findings of this study is not publicly available as it contains potentially identifiable and sensitive information about participants. Data is available from the corresponding author upon request.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 Elsevier. This is an author produced version of a paper subsequently published in Patient Education and Counseling. Uploaded in accordance with the publisher's self-archiving policy. Article available under the terms of the CC-BY-NC-ND licence (https://creativecommons.org/licenses/by-nc-nd/4.0/). |
Keywords: | cancer; child; leukaemia; parents; quality of life; treatment outcome |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Science (Sheffield) > Department of Psychology (Sheffield) The University of Sheffield > Faculty of Social Sciences (Sheffield) > Management School (Sheffield) |
Funding Information: | Funder Grant number Department of Health and Social Care N/A |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 30 Apr 2021 07:44 |
Last Modified: | 28 Apr 2022 00:38 |
Status: | Published |
Publisher: | Elsevier |
Refereed: | Yes |
Identification Number: | 10.1016/j.pec.2021.04.015 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:173423 |