Taylor, B., Tod, A. orcid.org/0000-0001-6336-3747, Gardiner, C. et al. (3 more authors) (2021) Effects of the COVID-19 pandemic on people with mesothelioma and their carers. Cancer Nursing Practice, 20 (2). ISSN 1475-4266
Abstract
Mesothelioma is a rare, life-limiting and aggressive cancer with a high symptom burden. This article explores the effect of the coronavirus disease 2019 (COVID-19) pandemic on the experiences of patients with mesothelioma and their carers. The charity Mesothelioma UK conducted a service evaluation that included two surveys – one with patients with mesothelioma and their carers, and the other with UK mesothelioma clinical nurse specialists – to explore the effects of the COVID-19 pandemic.
This article presents the results of these surveys, which suggest that patients with mesothelioma and their carers have been disproportionately affected by the COVID-19 pandemic in various areas. These include treatment and investigations, communication with healthcare teams, confusion concerning shielding, and the emotional and psychological burden of the pandemic. The authors include recommendations for practice to ensure patients and their families receive optimal treatment and support during the remainder of the pandemic.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 RCN Publishing. This is an author-produced version of a paper subsequently published in Cancer Nursing Practice. Uploaded in accordance with the publisher's self-archiving policy. |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > The Medical School (Sheffield) |
Funding Information: | Funder Grant number Mesothelioma UK Charitable Trust N/A |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 23 Apr 2021 13:37 |
Last Modified: | 23 Apr 2021 13:37 |
Status: | Published |
Publisher: | RCN Publishing |
Refereed: | Yes |
Identification Number: | 10.7748/cnp.2021.e1773 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:173354 |