Mahmood, F, English, B, Waxman, R et al. (1 more author) (2021) Development of an Instrument for Patient Self-assessment in Psoriatic Arthritis. Journal of Rheumatology, 48 (11). pp. 1680-1685. ISSN 0315-162X
Abstract
Objective: Due to the recent pandemic caused by the coronavirus disease 2019 (COVID-19), in-person scheduled rheumatology appointments in many countries have been reserved for urgent cases only. Here we report the development of a multidimensional, patient-completed disease assessment tool for use in psoriatic arthritis (PsA).
Methods: A focus group development and education method was used, followed by a paired observation design to assess feasibility and validity. The Psoriatic Arthritis Disease Activity Score (PASDAS) was used as the basis for the clinical assessments, but elements of this tool were modified during the focus group sessions.
Results: A preliminary tool assessed tender and swollen joint counts, enthesitis, dactylitis, area of skin involved by psoriasis, and scores for global disease activity, fatigue, and spinal pain. In parallel assessments, good agreement was found between subject and healthcare professional (HCP) assessors, although overall disease activity was low.
Conclusion: A self-assessment tool for disease activity in PsA has been developed in conjunction with patients, demonstrating generally good agreement between patients and HCPs; however, further validation is needed before it can be recommended for clinical practice.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 by the Journal of Rheumatology. This is a pre-copyediting, author-produced PDF of an article accepted for publication in The Journal of Rheumatology following peer review. The definitive publisher-authenticated version Mahmood, F, English, B, Waxman, R et al. (1 more author) (2021) Development of an Instrument for Patient Self-assessment in Psoriatic Arthritis. Journal of Rheumatology, 48 (11). pp. 1680-1685. ISSN 0315-162X is available online at: https://doi.org/10.3899/jrheum.210010. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | outcome measures, patient-reported measures, psoriasis, psoriatic arthritis, self-assessment |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Institute of Rheumatology & Musculoskeletal Medicine (LIRMM) (Leeds) > Inflammatory Arthritis (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 31 Mar 2021 15:28 |
Last Modified: | 01 Aug 2022 00:13 |
Status: | Published |
Publisher: | Journal of Rheumatology |
Identification Number: | 10.3899/jrheum.210010 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:172648 |