Pini, S, Hackett, J, Taylor, S et al. (4 more authors) (2021) Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study. European Journal of Cancer Care, 30 (1). e13340. ISSN 0961-5423
Abstract
Objectives:
The aim of this paper was to identify current barriers, facilitators and experiences of raising and discussing palliative care with people with advanced cancer.
Methods:
Semi‐structured interviews were conducted with patients with advanced cancer and healthcare professionals (HCPs). Patients were included who had and had not been referred to palliative care. Transcripts were analysed using framework analysis.
Results:
Twenty‐four patients and eight HCPs participated. Two overarching themes and five sub‐themes emerged:
Theme one—referral process: timing and triggers, responsibility.
Theme two—engagement: perception of treatment, prognosis and palliative care, psychological and emotional preparedness for discussion, and understanding how palliative care could benefit present and future care.
Conclusion:
There is a need to identify suitable patients earlier in their cancer trajectory, address misconceptions about palliative care, treatment and prognosis, and better prepare patients and HCPs to have meaningful conversations about palliative care. Patients and HCPs need to establish and communicate the relevance of palliative care to the patient's current and future care, and be clear about the referral process.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2020 Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) (https://creativecommons.org/licenses/by-nc/4.0/) |
Keywords: | advanced cancer; complex intervention development; interviews; palliative care; qualitative; shared decision-making |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Psychiatry and Behavioural Sciences (Leeds) |
Funding Information: | Funder Grant number NIHR National Inst Health Research PB-PG-0416-20004 |
Depositing User: | Symplectic Publications |
Date Deposited: | 28 Oct 2020 13:02 |
Last Modified: | 25 Jun 2023 22:28 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/ecc.13340 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:167190 |