Patel, VA, Shelswell, J, Hillyard, N et al. (2 more authors) (2021) A study of the reporting of patient and public involvement and engagement (PPIE) in orthodontic research. Journal of Orthodontics, 48 (1). 1465312520. pp. 42-51. ISSN 1465-3125
Abstract
Introduction:
Patient and public involvement and engagement (PPIE) in research is an essential component of high-quality research. Patients and the public can identify which research topics are most relevant to them, contribute to study design, and interpretation and dissemination of findings. While inclusion of PPIE is widely adopted in medical research, awareness within the dental research community is more limited.
Aim:
To examine patient and public involvement and engagement in orthodontic research activity.
Design:
Identification and appraisal of use of PPIE in orthodontic research reporting and funding applications using a systematic approach.
Methods:
Three sources of information were examined: (1) research articles published between September 2018 and September 2019 in four major orthodontic journals. Articles were examined for reported PPIE; (2) common funding bodies for orthodontic research were assessed to establish whether PPIE was mandated (National Institute for Health Research, Medical Research Council, Wellcome Trust, Chief Scientist Office (Scotland), Health and Care Research Wales, British Orthodontic Society Foundation, Royal College of Surgeons and CLEFT); and (3) publication guidance for authors in these journals was examined to identify whether reporting of PPIE was included.
Results:
Of the 363 research articles, 2 (0.6%) mention patient/public involvement. None of the 363 research articles mention patient/public engagement. Of nine funding bodies, 2 (22%) request evidence of patient/public involvement as a condition of receiving funding with one (11%) expecting evidence of public engagement to be provided as a condition of receiving funding. None of the four major orthodontic journals include patient/public involvement and/or engagement in their guidance for authors.
Conclusion:
There is currently: (1) a notable lack of reporting of PPIE in orthodontic research; (2) variability in the requirements of funding bodies for researchers to include PPIE in funding applications and throughout the research process; and (3) no stipulation in journals’ instructions for authors.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The Author(s) 2020. This is an open access article under the terms of the Creative Commons Attribution 4.0 International (CC BY 4.0) (https://creativecommons.org/licenses/by/4.0/). |
Keywords: | engagement; involvement; methodology; orthodontics; patient; public; research; study |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Dentistry (Leeds) > Applied Health and Clinical Translation (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Dentistry (Leeds) > Orthodontics (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 09 Nov 2020 16:14 |
Last Modified: | 25 Jun 2023 22:28 |
Status: | Published |
Publisher: | SAGE Publications |
Identification Number: | 10.1177/1465312520968574 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:166912 |