Sbaffi, L. orcid.org/0000-0003-4920-893X and King, K. (2020) Living with endometriosis: the role of the Internet in supporting the diagnosis and treatment process. Journal of Consumer Health on the Internet, 24 (4). pp. 370-390. ISSN 1539-8285
Abstract
Those living with endometriosis turn to online resources for information and support. Despite an abundance of information, delays in diagnosis and perpetuation of untruths remain. This study aims to assess and evaluate the role of the Internet in the diagnosis, treatment options and support of people living with endometriosis. The results of this mixed-methods study show that people are very active information seekers with the majority favoring national endometriosis websites and their associated Facebook accounts. There is a positive attitude toward information and sharing experiences online, but women trust official endometriosis organizations more than other resources on the Internet.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2020 Informa UK Ltd. This is an author-produced version of a paper subsequently published in Journal of Consumer Health on the Internet. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Endometriosis; Internet; Online Information; Support |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Social Sciences (Sheffield) > Information School (Sheffield) |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 01 Sep 2020 11:39 |
Last Modified: | 07 Jun 2022 00:38 |
Status: | Published |
Publisher: | Taylor & Francis |
Refereed: | Yes |
Identification Number: | 10.1080/15398285.2020.1816803 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:164903 |