Thoft, DS, Ward, A and Youell, J (2021) Journey of ethics – Conducting collaborative research with people with dementia. Dementia, 20 (3). pp. 1005-1024. ISSN 1471-3012
Abstract
This paper explores some of the ethical considerations of working collaboratively with people with dementia within research based upon the experiences, challenges and learning from three doctoral research studies. Focus is on the research relationship with participants and gatekeepers, the importance of setting and access, the power relations within the research and ways in which people with dementia can be supported to be active and have a voice in research. This sits within an ethical framework of principalist ethics and ethics of care to guide not only how research is planned ethically and with consideration of participants, but also how this can support decisions made in situ. The aim is to share, based upon these three studies, ways of managing and working through some of the ethical consideration to support researchers in their decisions in planning and conducting research with people with dementia as active collaborators.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © The Author(s) 2020. This is an author produced version of an article published in Dementia. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Dementia, ethics, involving people with dementia, collaborative research, qualitative methods |
Dates: |
|
Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Adult (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 03 Jun 2020 12:48 |
Last Modified: | 29 Jul 2022 10:36 |
Status: | Published |
Publisher: | SAGE Publications |
Identification Number: | 10.1177/1471301220919887 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:161475 |