Ngan, OMY, Yi, H, Bryant, L orcid.org/0000-0002-1972-7395 et al. (3 more authors) (2020) Parental expectations of raising a child with disability in decision-making for prenatal testing and termination of pregnancy: A mixed methods study. Patient Education and Counseling, 103 (11). pp. 2373-2383. ISSN 0738-3991
Abstract
Objective: To examine attitudes toward prenatal testing and termination of pregnancy (TOP) among parents and obstetric providers in relation to their views on raising a child with disability.
Methods: An explanatory sequential mixed methods study. A survey among 274 parents and 141 providers was followed by interviews with 26 parents and 10 providers. Using multivariate analysis, the relationships between attitudes were examined. Thematic analysis was used to identify the reasons behind the attitudes.
Results: In comparison with providers, parents reported more positive attitudes toward raising a child with disability and more moral views about TOP. Providers reported more variations in attitudes toward offering prenatal testing and TOP. Significant associations were found between attitudes toward prenatal testing, raising a child with disability, reproductive autonomy, and TOP. Three major themes were identified: (1) meanings of parenthood from genetic tests; (2) views toward TOP and parental responsibility; and (3) implications of advanced extended prenatal genetic testing.
Conclusions: Perceived social–cultural norms of disabilities and parental expectations of raising a child with disability influence decision-making regarding TOP.
Practice Implications: As more conditions of the fetus are able to be detected, the social–cultural implications of the technology and disabilities need to be addressed in antenatal care.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2020 Elsevier B.V. All rights reserved. This is an author produced version of an article published in Patient Education and Counseling. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Prenatal testing; Termination of pregnancy; Disability; Parenting; Mixed-methods |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Psychiatry and Behavioural Sciences (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 13 May 2020 10:25 |
Last Modified: | 24 Feb 2025 10:50 |
Status: | Published |
Publisher: | Elsevier |
Identification Number: | 10.1016/j.pec.2020.05.010 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:160550 |
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Filename: 31 - NIPT in Hong Kong - PEC - May 2020.pdf
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