Smith, J orcid.org/0000-0003-0974-3591, Ali, P, Birks, Y et al. (6 more authors) (2020) Umbrella review of family-focused care interventions supporting families where a family member has a long-term condition. Journal of Advanced Nursing, 76 (8). pp. 1911-1923. ISSN 0309-2402
Abstract
Aim
The aim of this study was to summarize reviews of family‐focused care interventions that support families with a family member with a long‐term condition across the life course.
Design
Umbrella review.
Data sources
Medline (1946–2019), Cochrane Database of Systematic Reviews (2019), Database of Abstracts of Reviews of Effect and EMBASE (1947–2019), CINAHL (1981–2019), Health Technology Assessment Database (2019) and PsycInfo (1806–2019).
Review Methods
All authors independently undertook title/abstract screening, data extraction and quality appraisal on a cluster of papers, working in groups of two or three to reach a consensus. The AMSTAR tool was used to appraise the quality of the studies and descriptive syntheses were undertaken.
Results
Fifteen reviews met the selection criteria. Overall family‐focussed care and associated terms were poorly defined. Typically interventions were educational or psychological therapy/counselling with the goal of empowering individuals to manage their condition. There is some evidence that family‐focused care interventions can improve clinical/biological health measures and self‐care outcomes such as treatment adherence. Multicomponent psychosocial interventions that include cognitive‐behavioural therapy, skills training, education and support and are focused on wider family members appear to improve family relationships and martial functioning.
Conclusion
Long‐term conditions have an impact on individual and family health and well‐being, yet the impact of family‐focused care interventions on family outcomes was overall inconclusive. A better understanding of how family‐focused care interventions improve the health and well‐being of individuals and their families is needed to promote the inclusion of family‐focused care into practice.
Impact
Supporting people with a long‐term condition is a key health and social care priority. Family‐focused care interventions have potential to improve the health and well‐being of individuals and families, but there is a need to evaluate their clinical and cost‐effectiveness. The findings from this review could be used by funding bodies when commissioning research for long‐term conditions.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2020 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: | family nursing ;family‐focused care; life course; long‐term conditions; umbrella review |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 09 Jun 2020 10:29 |
Last Modified: | 25 Jun 2023 22:15 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/jan.14367 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:160192 |