Kerr, A orcid.org/0000-0002-9958-301X, Swallow, J, Chekar, CK et al. (1 more author) (2019) Genomic Research and the Cancer Clinic: Uncertainty and expectations in professional accounts. New Genetics and Society, 38 (2). pp. 222-239. ISSN 1463-6778
Abstract
This paper explores clinicians’ and scientists’ accounts of genomic research in cancer care and the complexities and challenges involved with delivering this work. Contributing to the sociology of (low) expectations, we draw on sociological studies of uncertainty in medicine to explore their accounts of working with uncertainty as part of the management of patient and institutional expectations. We consider their appeals to the importance of modest inquiry and framing of the uncertainties of genomic medicine as normal and at times welcome as they sought to configure professional autonomy and jurisdictions and cultivate an experimental ethos amongst their patients. We argue that these types of uncertainty work (Star, 1985) are a key feature of managing expectations at the intersections of genomic research and clinical care.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons. org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
Keywords: | Genomics; Cancer; Expectations; Uncertainty |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Education, Social Sciences and Law (Leeds) > School of Sociology and Social Policy (Leeds) |
Funding Information: | Funder Grant number Wellcome Trust 104832/Z/14/Z |
Depositing User: | Symplectic Publications |
Date Deposited: | 19 Feb 2019 15:22 |
Last Modified: | 25 Jun 2023 21:43 |
Status: | Published |
Publisher: | Taylor & Francis |
Identification Number: | 10.1080/14636778.2019.1586525 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:142671 |