Vasey, J, Smith, J orcid.org/0000-0003-0974-3591, Kirshbaum, MN et al. (1 more author) (2019) Tokenism or true partnership: Parental involvement in a child's acute pain care. Journal of Clinical Nursing, 28 (9-10). pp. 1491-1505. ISSN 0962-1067
Abstract
AIMS: To explore parental involvement in the child's acute pain care and establish ways in which parental preferences for involvement in their child's care can be identified, facilitated and enhanced by nurses. BACKGROUND: Despite growing evidence supporting effective acute pain management in children and the availability of national and international practice guidelines, children still experience acute pain. Involving parents in their child's pain care has been identified as being a central tenet of pain management in children. DESIGN AND METHODS: A qualitative study using an ethnographical approach with non-participant observation and follow up semi-structured interviews was undertaken. Nurses (n=14), parents (n=41), grandparents (n=2), other relative (n=1) and children (n=30) participated. The framework approach underpinned data analysis. Consolidated criteria for reporting qualitative research (COREQ) enabled comprehensive reporting of the study. RESULTS: Three concepts emerged from the data: 'parents as advocates for their child', 'nurses promoting involvement and partnership' and 'nurses unintentionally preventing involvement and partnership'. Variations in the way parents were involved in their child's pain care were identified. Despite family-centred care being the dominant model of involving families in their child's care, evidence of this being implemented was limited. Parents attempted to advocate effective pain care for their child, whether or not they were supported by nurses. CONCLUSIONS: Parental involvement in their child's acute pain care can improve the child's pain experience, reduce parental anxiety and increase parents' satisfaction in care. Nurses aspired to involve parents in pain care, but did not always enact this in practice. RELEVANCE FOR PRACTICE: Children deserve optimum pain care, which includes parental involvement. Parental involvement underpinned by the principles of family-centred care was poorly implemented. Parents attempted to be involved and advocate for their child's pain care whether or not they were supported by nurses. An alternative approach for supporting parents to advocate in their child's acute pain care is offered, the "Partnership in Pain Care Model".
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2018 John Wiley & Sons Ltd. This is the peer reviewed version of the following article: Vasey J, Smith J, Kirshbaum MN, Chirema K. Tokenism or true partnership: Parental involvement in a child’s acute pain care. J Clin Nurs. 2019, which has been published in final form at https://doi.org/10.1111/jocn.14747. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Acute; Child; Nurse; Pain; decision-making; family-centred care; involvement; partnership |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 14 Jan 2019 15:49 |
Last Modified: | 14 Dec 2019 01:39 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/jocn.14747 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:140926 |