Waite-Jones, JM orcid.org/0000-0003-3996-5371 and Swallow, V orcid.org/0000-0001-8504-4704 (2018) Peer-based social support for young-people with Juvenile Arthritis: views of young people, parents/carers and healthcare professionals within the UK. Journal of Pediatric Nursing, 43. e85-e91. ISSN 0882-5963
Abstract
Purpose: A deeper understanding was sought of what peer-based social support means to young people with juvenile arthritis within the UK and ways in which it could be best provided.
Design and Methods: A secondary analysis of underused, descriptively rich data relating to peer-based support contributed by young people with juvenile arthritis, their parents/carers and healthcare professionals from a qualitative study (seeking their views on a potential self-management mobile-app) was carried out using methods suggested by Interpretive Phenomenological Analysis.
Results: Peer-based support can provide a new kind of ‘normality’ for young people with juvenile arthritis, including greater understanding, relief, reassurance, shared learning and increased self-efficacy. However, the risk of stigma through this shared identity suggests a need to offer various forms of access including using new electronic media.
Conclusion and Implications: The evidence suggests that although desired, the potential social cost of identifying with peers living with juvenile arthritis is influenced by the way such support is provided, which in turn impacts on how readily it will be accessed. This suggests the need to provide various means of accessing peer-based contact, including electronic media, to ensure that young people with juvenile arthritis benefit. Therefore, when promoting and supporting peer-based social support, as far as possible, professionals need to individualise ways in which such support can be accessed because there is no ‘one size fits all’ approach.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2018 Elsevier Inc. All rights reserved. This is an author produced version of a paper published in Journal of Pediatric Nursing. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Peer- based social support; Young people; Juvenile arthritis; Support groups; Online social support |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 26 Nov 2018 14:02 |
Last Modified: | 02 Aug 2019 00:43 |
Status: | Published |
Publisher: | Elsevier |
Identification Number: | 10.1016/j.pedn.2018.07.012 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:139119 |
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