Ross, E, Broer, T, Kerr, A orcid.org/0000-0002-9958-301X et al. (1 more author) (2018) Identity, community and care in online accounts of hereditary colorectal cancer syndrome. New Genetics and Society, 37 (2). pp. 117-136. ISSN 1463-6778
Abstract
Sociological literature has explored how shifts in the point at which individuals may be designated as diseased impact upon experiences of ill health. Research has shown that experiences of being genetically “at risk” are shaped by and shape familial relations, coping strategies, and new forms of biosociality. Less is known about how living with genetic risk is negotiated in the everyday and over time, and the wider forms of identity, communities and care this involves. This article explores these arrangements drawing on online bloggers’ accounts of Familial Adenomatous Polyposis (FAP). We show how accounts of genetic risk co-exist with more palpable experiences of FAP in everyday life, notably the consequences of prophylactic surgeries. We consider how the act of blogging represents but also constitutes everyday experiences of hereditary cancer syndrome as simultaneously ordinary and exceptional, and reflect on the implications of our analysis for understanding experiences of genetic cancer risk.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons. org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
Keywords: | colorectal cancer, temporality, hereditary cancer syndrome, genetic risk, internet research |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Education, Social Sciences and Law (Leeds) > School of Sociology and Social Policy (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 20 Jun 2018 12:39 |
Last Modified: | 20 Jun 2018 12:39 |
Status: | Published |
Publisher: | Taylor & Francis |
Identification Number: | 10.1080/14636778.2018.1469974 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:132321 |