Gray-Burrows, KA orcid.org/0000-0002-1550-5066, Willis, TA orcid.org/0000-0002-0252-9923, Foy, R orcid.org/0000-0003-0605-7713 et al. (10 more authors) (2018) Role of patient and public involvement in implementation research: a consensus study. BMJ Quality and Safety, 27 (10). pp. 858-864. ISSN 2044-5415
Abstract
Background: Patient and public involvement (PPI) is often an essential requirement for research funding. Distinctions can be drawn between clinical research, which generally focuses on patients, and implementation research, which generally focuses on health professional behaviour. There is uncertainty about the role of PPI in this latter field. We explored and defined the roles of PPI in implementation research to inform relevant good practice guidance.
Methods: We used a structured consensus process using a convenience sample panel of nine experienced PPI and two researcher members. We drew on available literature to identify 21 PPI research roles. The panel rated their agreement with roles independently online in relation to both implementation and clinical research. Disagreements were discussed at a face-to-face meeting prior to a second online rating of all roles. Median scores were calculated and a final meeting held to review findings and consider recommendations.
Results: Ten panellists completed the consensus process. For clinical research, there was strong support and consensus for the role of PPI throughout most of the research process. For implementation research, there were eight roles with consensus and strong support, seven roles with consensus but weaker support and six roles with no consensus. There were more disagreements relating to PPI roles in implementation research compared with clinical research. PPI was rated as contributing less to the design and management of implementation research than for clinical research.
Conclusions: The roles of PPI need to be tailored according to the nature of research to ensure authentic and appropriate involvement. We provide a framework to guide the planning, conduct and reporting of PPI in implementation research, and encourage further research to evaluate its use.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © 2018, Article author(s) (or their employer(s) unless otherwise stated in the text of the article). This is an open access article under the terms of the Creative Commons Attribution License (CC-BY 4.0), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ |
Dates: |
|
Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Dentistry (Leeds) > Applied Health and Clinical Translation (Leeds) |
Funding Information: | Funder Grant number NIHR National Inst Health Research RP-PG-1209-10040 |
Depositing User: | Symplectic Publications |
Date Deposited: | 27 Mar 2018 09:35 |
Last Modified: | 25 Jun 2023 21:17 |
Status: | Published |
Publisher: | BMJ Publishing Group |
Identification Number: | 10.1136/bmjqs-2017-006954 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:128989 |