Paul, C and Holt, J orcid.org/0000-0003-2468-8148 (2017) Involving the public in mental health and learning disability research: Can we, should we, do we? Journal of Psychiatric and Mental Health Nursing, 24 (8). pp. 570-579. ISSN 1351-0126
Abstract
INTRODUCTION: Patient and public involvement (PPI) is integral to UK health research guidance, however implementation is inconsistent. There is little research into the attitudes of NHS health researchers towards PPI. AIM: This study explored the attitude of researchers working in mental health and learning disability services in the UK towards PPI in health research. METHOD: Using a qualitative methodology, semi-structured interviews were conducted with a purposive sample of eight researchers. A framework approach was used in the analysis to generate themes and core concepts. RESULTS: Participants valued the perspective PPI could bring to research, but frustration with tokenistic approaches to involvement work was also evident. Some cultural and attitudinal barriers to integrating PPI across the whole research process were identified. DISCUSSION: Despite clear guidelines and established service user involvement, challenges still exist in the integration of PPI in mental health and learning disability research in the UK. IMPLICATIONS FOR PRACTICE: Guidelines on PPI may not be enough to prompt changes in research practice. Leaders and researchers need to support attitudinal and cultural changes where required, to ensure the full potential of PPI in mental health and learning disability services research is realized. RELEVANCE STATEMENT: Findings suggest that despite clear guidelines and a history of service user involvement, there are still challenges to the integration of PPI in mental health and learning disability research in the UK. For countries where PPI guidelines are being developed, attention needs to be paid to cultural factors in the research community to win “hearts and minds” and support the effective integration of PPI across the whole research process.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2017, John Wiley & Sons Ltd. This is the peer reviewed version of the following article: 'Paul, C and Holt, J (2017) Involving the public in mental health and learning disability research: Can we, should we, do we? Journal of Psychiatric and Mental Health Nursing, 24 (8). pp. 570-579,' which has been published in final form at https://doi.org/10.1111/jpm.12404. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. |
Keywords: | practice development; qualitative methodology; research governance; user involvement |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Adult (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 07 Jul 2017 11:26 |
Last Modified: | 27 May 2018 00:38 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/jpm.12404 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:118727 |