Al-Jawahiri, R. and Milne, E. orcid.org/0000-0003-0127-0718 (2017) Resources available for autism research in the big data era: a systematic review. PeerJ, 5. e2880.
Abstract
Recently, there has been a move encouraged by many stakeholders towards generating big, open data in many areas of research. One area where big, open data is particularly valuable is in research relating to complex heterogeneous disorders such as Autism Spectrum Disorder (ASD). The inconsistencies of findings and the great heterogeneity of ASD necessitate the use of big and open data to tackle important challenges such as understanding and defining the heterogeneity and potential subtypes of ASD. To this end, a number of initiatives have been established that aim to develop big and/or open data resources for autism research. In order to provide a useful data reference for autism researchers, a systematic search for ASD data resources was conducted using the Scopus database, the Google search engine, and the pages on 'recommended repositories' by key journals, and the findings were translated into a comprehensive list focused on ASD data. The aim of this review is to systematically search for all available ASD data resources providing the following data types: phenotypic, neuroimaging, human brain connectivity matrices, human brain statistical maps, biospecimens, and ASD participant recruitment. A total of 33 resources were found containing different types of data from varying numbers of participants. Description of the data available from each data resource, and links to each resource is provided. Moreover, key implications are addressed and underrepresented areas of data are identified.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | Copyright 2017 Al-jawahiri and Milne. Distributed under Creative Commons CC-BY 4.0 (https://creativecommons.org/licenses/by/4.0/) |
Keywords: | ASD; Autism spectrum disorder; Biobanks; Data sharing; Databases; Heterogeneous disorders; Neuroimaging data; Open science; Phenotypic data; Subtyping |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Science (Sheffield) > Department of Psychology (Sheffield) |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 08 Mar 2017 12:33 |
Last Modified: | 08 Mar 2017 12:33 |
Published Version: | https://doi.org/10.7717/peerj.2880 |
Status: | Published |
Publisher: | PeerJ |
Refereed: | Yes |
Identification Number: | 10.7717/peerj.2880 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:113046 |