Furness, CL, Smith, L orcid.org/0000-0002-4280-6323, Morris, E orcid.org/0000-0002-1075-6544 et al. (3 more authors) (2017) Cancer Patient Experience in the Teenage Young Adult Population— Key Issues and Trends Over Time: An Analysis of the United Kingdom National Cancer Patient Experience Surveys 2010–2014. Journal of Adolescent and Young Adult Oncology, 6 (3). pp. 450-458. ISSN 2156-5333
Abstract
Improving outcomes for teenagers and young adults (TYA) with cancer is a key element of the national cancer strategy in England. Recognition of the unique needs of this group has led to the development of recommendations for specific models of care and delivery of this care through the provision of dedicated clinical units in principal treatment centers (PTCs) across the United Kingdom. The aim of this study was to understand the current cancer patient experience for this patient group. We aimed to determine whether treatment experience is influenced by place of treatment and whether it has changed over time using patient-reported data from national cancer patient experience surveys. This study highlights that a prolonged pathway to diagnosis remains an issue for the TYA group and identifies areas on which quality improvement measures for TYA services should focus, including communication and involvement of the patient in treatment decisions. Positive experiences for the TYA group such as involvement in research were also highlighted. Treatment within a TYA PTC was associated with positive patient perception in a number of key areas highlighting the need for future studies to fully elucidate the impact of the full range of TYA services now available in the United Kingdom on both patient experience and outcome.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © 2017, Mary Ann Liebert, Inc. This is a pre-copy-editing, author-produced PDF of an article accepted for publication in Journal of Adolescent and Young Adult Oncology following peer review. The definitive publisher-authenticated version Cancer Patient Experience in the Teenage Young Adult Population— Key Issues and Trends Over Time: An Analysis of the United Kingdom National Cancer Patient Experience Surveys 2010–2014 is available online at: https://doi.org/10.1089/jayao.2016.0058. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | quality of life; psychosocial; patient experience |
Dates: |
|
Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > Institute of Molecular Medicine (LIMM) (Leeds) > Section of Epidemiology and Biostatistics (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 02 Mar 2017 15:49 |
Last Modified: | 20 May 2018 00:38 |
Status: | Published |
Publisher: | Mary Ann Liebert |
Identification Number: | 10.1089/jayao.2016.0058 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:112956 |