Milnes, L orcid.org/0000-0002-1110-6527 (2016) Co-ordinated and individualised transition planning for young people with complex needs. Nursing Children and Young People, 28 (7). p. 19. ISSN 2046-2336
Abstract
Effective transition services can help young people with long-term conditions, such as cerebral palsy, and learning disabilities to learn to practise self-care and develop healthy behaviours. But transition is complicated if multiple specialist services are required. This study raises awareness of transitional issues and families’ concerns. Young people with cerebral palsy express apprehension about losing the close relationship with children’s care. Research with this population describing their experiences of transition adds to this study. Other concerns described were a lack of communication between providers in advance of transition. Parents and young people describe their feelings of abandonment at the time of transition and adult services’ lack of knowledge about their condition. The diversity in transitional services across health, education and social work for young people with complex needs can only add to their anxieties. It remains to be seen whether National Institute for Health and Care Excellence (NICE) guidelines for transition to adult services will increase the quality and consistency of transitional services (NICE 2016). Variation in transitional pathways across providers is almost inevitable with local adaptations of transition models, differing knowledge and experience of healthcare professionals, and funding availability. We need to know how this variation will affect young people with cerebral palsy moving into adulthood. A priority for improvement should be tackling the variation in transition. Individualised transition planning might improve the consistency of care
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2016 RCNi Ltd. All rights reserved. This is an author produced version of a paper published in Nursing Children and Young People. Uploaded in accordance with the publisher's self-archiving policy. |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 11 Nov 2016 13:46 |
Last Modified: | 16 Jan 2018 14:48 |
Published Version: | https://doi.org/10.7748/ncyp.28.7.19.s21 |
Status: | Published |
Publisher: | RCN Publishing |
Identification Number: | 10.7748/ncyp.28.7.19.s21 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:107261 |