Winterbottom, A.E., Gavaruzzi, T., Mooney, A. et al. (8 more authors) (2016) Patient Acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: A Prospective Non-Randomized Comparison Study Across 6 Predialysis Services. Peritoneal Dialysis International, 36 (4). pp. 374-381. ISSN 0896-8608
Abstract
Background: Patients are satisfied with their kidney care but want more support in making dialysis choices. Predialysis leaflets vary across services, with few being sufficient to enable patients' informed decision making. We describe the acceptability of a patient decision aid and feasibility of evaluating its effectiveness within usual predialysis practice. Methods: Prospective non-randomized comparison design, Usual Care or Usual Care Plus Yorkshire Dialysis Decision Aid Booklet (+YoDDA), in 6 referral centers (Yorkshire-Humber, UK) for patients with sustained deterioration of kidney function. Consenting (C) patients completed questionnaires after predialysis consultation (T1), and 6 weeks later (T2). Measures assessed YoDDA's utility to support patients' decisions and integration within usual care. Results: Usual Care (n = 105) and +YoDDA (n = 84) participant characteristics were similar: male (62%), white (94%), age (mean = 62.6; standard deviation [SD] 14.4), kidney disease severity (glomerular filtration rate [eGFR] mean = 14.7; SD 3.7); decisional conflict was < 25; choice-preference for home versus hospital dialysis approximately 50:50. Patients valued receiving YoDDA, reading it on their own (96%), and sharing it with family (72%). The +YoDDA participants had higher scores for understanding kidney disease, reasoning about options, feeling in control, sharing their decision with family. Study engagement varied by center (estimated range 14 – 49%; mean 45%); participants varied in completion of decision quality measures. Conclusions: Receiving YoDDA as part of predialysis education was valued and useful to patients with worsening kidney disease. Integrating YoDDA actively within predialysis programs will meet clinical guidelines and patient need to support dialysis decision making in the context of patients' lifestyle.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2016 International Society for Peritoneal Dialysis. This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/4.0/. |
Keywords: | Patient decision aid; shared decision making; dialysis; conservative care; renal replacement therapy; implementation science |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Sheffield Teaching Hospitals |
Funding Information: | Funder Grant number DEPARTMENT OF HEALTH NONE NATIONAL INSTITUTE FOR HEALTH RESEARCH NONE SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST CLAHRC ROYAL COLLEGE OF GENERAL PRACTITIONERS SFB/09/13 ROYAL COLLEGE OF GENERAL PRACTITIONERS SFB-2010-05 NATIONAL INSTITUTE FOR HEALTH RESEARCH IPF-12-14 ROYAL COLLEGE OF GENERAL PRACTITIONERS SFB-2012-05 GREAT BRITAIN SASAKAWA FOUNDATION B49 ROYAL COLLEGE OF GENERAL PRACTITIONERS None NHS EXECUTIVE TRENT UNSPECIFIED EUROPEAN COMMISSION - FP6/FP7 UNSPECIFIED NHS EXECUTIVE TRENT UNSPECIFIED TRENT HEALTH EXECUTIVE RB Q 96XX5 NHS EXECUTIVE TRENT NONE SPECIAL TRUSTEES FOR THE FORMER UNITED SHEFFIELD HOSPITALS 87781 NATIONAL TREATMENT AGENCY NTA/52B/14 SHEFFIELD HEALTH AND SOCIAL RESEARCH CONSORTIUM ZD71 DEPARTMENT OF HEALTH NONE CLAIRE WAND FUND None SHEFFIELD HEALTH AND SOCIAL RESEARCH CONSORTIUM None ECONOMIC & SOCIAL RESEARCH COUNCIL RES-062-23-2078 EUROPEAN COMMISSION - FP6/FP7 PL/08/LLP-LDV/VETPRO/140295 DEPARTMENT OF HEALTH NONE DEPARTMENT OF HEALTH PD02/066 NATIONAL TREATMENT AGENCY UNSPECIFIED SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST CLAHRC FRED AND ANN GREEN LEGACY NONE NATIONAL TREATMENT AGENCY UNSPECIFIED |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 02 Nov 2016 10:57 |
Last Modified: | 02 Nov 2016 10:58 |
Published Version: | http://dx.doi.org/10.3747/pdi.2014.00274 |
Status: | Published |
Publisher: | Multimed Inc |
Refereed: | Yes |
Identification Number: | 10.3747/pdi.2014.00274 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:106405 |
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