Fryer, K., Baxter, S. orcid.org/0000-0002-6034-5495 and Brumfitt, S. (2016) The meaning of participation to stroke survivors: a qualitative study. International Journal of Therapy and Rehabilitation, 23 (8). pp. 356-362. ISSN 1741-1645
Abstract
Background/Aims:
The effect of stroke can be all encompassing, and has an impact on significant roles in life. Assessing someone's level of participation is seen as essential to understanding the social impact of a disability on a person's life, and tailoring support accordingly. This study aimed to examine the meaning of participation to stroke survivors, in order to provide insight into the meaning of participation in the context of a stroke.
Methods:
A qualitative approach drawing on methods of phenomenology was used, with data collected via semi-structured interviews and a follow-up focus group. Analysis was undertaken using techniques of interpretative phenomenological analysis.
Findings:
Six stroke survivors and six carers were interviewed, and four stroke survivors attended a focus group. Three main themes in relation to the meaning of participation were identified in the data: ‘being actively involved’; ‘making meaningful choices’; and ‘being me’.
Conclusions:
The work confirms the findings of previous studies on participation, and adds to current understandings by developing the meaning of ‘involvement’ beyond a social concept. It highlights that ‘involvement’ can include active engagement in life through being alone. It also identifies a specific link between stroke survivors’ sense of self, and participation.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2016 Mark Allen Healthcare. This is an author produced version of a paper subsequently published in International Journal of Therapy and Rehabilitation. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | stroke; participation; identity; qualitative research; stroke survivors |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > ScHARR - Sheffield Centre for Health and Related Research |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 07 Oct 2016 15:43 |
Last Modified: | 25 Oct 2016 01:37 |
Published Version: | http://dx.doi.org/10.12968/ijtr.2016.23.8.356 |
Status: | Published |
Publisher: | Mark Allen Healthcare |
Refereed: | Yes |
Identification Number: | 10.12968/ijtr.2016.23.8.356 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:105652 |