Lyons, EA, Jones, DE, Swallow, VM orcid.org/0000-0001-8504-4704 et al. (1 more author) (2017) An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment. Journal of Applied Research in Intellectual Disabilities, 30 (4). pp. 727-742. ISSN 1360-2322
Abstract
Background: The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Methods: Thirteen qualitative case studies were undertaken. A parent, a teacher/key worker and a therapist for each CYP were interviewed, and daily routines were observed, with selective video recording. Single case and cross case analyses were undertaken. Results: Attentive caregivers read the behavioural expressions of the CYP and responded reassuringly, safeguarding them from discomforting experiences. Threats to comfort include the restrictive nature of some equipment accessories, positioning errors and procedural stretching. Conclusions: The same item of equipment can be both comfortable and uncomfortable. Given the social and interactional world in which the CYP live and learn, it is others who must accept responsibility for ensuring their optimal level of comfort.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2016 John Wiley & Sons Ltd. This is the peer reviewed version of the following article: Lyons, E. A., Jones, D. E., Swallow, V. M. and Chandler, C. (2017), An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment. Journal of Applied Research in Intellectual Disabilities, 30: 727–742. doi:10.1111/jar.12267, which has been published in final form at https://doi.org/10.1111/jar.12267. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | adaptive seating; postural management equipment; comfort and discomfort; intellectual disabilities |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 29 Sep 2016 10:47 |
Last Modified: | 18 Jan 2023 16:31 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/jar.12267 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:105176 |