Dyson, Simon Martin, Ahmad, Waqar I U and Atkin, Karl Michael orcid.org/0000-0003-1070-8670 (2016) Narrative as Re-Fusion:Making Sense and Value from Sickle Cell and Thalassaemia Trait. Health: An Interdisciplinary Journal for the Social Study of Health,Illness and Medicine. ISSN 1461-7196
Abstract
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral domains, but has tended to focus on stories of living with genetic or chronic illness per se rather than liminal states such as genetic traits. This paper takes the case of genetic carriers within racialized minority groups, namely those with sickle cell or thalassaemia trait, and takes seriously the notion that their narratives are ethical practices. In line with the work of Paul Ricoeur, such storied practices are found to link embodiment, social relationships with significant others, and wider socio-cultural and socio-political relations. At the same time, such practices are about embodying values. These narratives may be considered as practices that re-fuse what genetic counselling has de-fused, in order to make sense of a life in its entirety and to strive ethically and collectively towards preferred social realities.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | This is an author-produced version of the published paper. Uploaded in accordance with the publisher’s self-archiving policy. Further copying may not be permitted; contact the publisher for details. |
Dates: |
|
Institution: | The University of York |
Academic Units: | The University of York > Faculty of Sciences (York) > Health Sciences (York) |
Depositing User: | Pure (York) |
Date Deposited: | 13 Jun 2016 14:17 |
Last Modified: | 23 Feb 2025 00:04 |
Published Version: | https://doi.org/10.1177/1363459316660861 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1177/1363459316660861 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:100513 |
Download
Filename: Dyson_Ahmad_and_Atkin_HEALTH_2016.doc
Description: Dyson Ahmad and Atkin_HEALTH_2016