Bailey, C. orcid.org/0000-0001-5030-430X, Howell, M. orcid.org/0000-0001-9740-712X, Raghunandan,, R. orcid.org/0000-0001-7848-6109 et al. (9 more authors) (2023) The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health related quality of life. Report. ScHARR HEDS Discussion Papers . School of Health and Related Research, University of Sheffield
Abstract
Recent systematic reviews show varying methods for eliciting, modelling, and reporting preference-based values for child health-related quality-of-life (HRQoL) outcomes, producing value-sets with different characteristics. Checklists can improve standards of reporting; however, existing checklists do not address methodological issues for valuing child HRQoL. We aimed to develop a checklist for studies generating values for child HRQoL, including for disease-specific states and value-sets for generic child HRQoL instruments. A conceptual model provided a structure for grouping items into five modules. Potential items were sourced from an adult HRQoL checklist review, with additional items specific to children developed using recent reviews. Checklist items were reduced by eliminating duplication and overlap, then refined for relevance and clarity via an iterative process. Long and short checklist versions were produced for different user needs. The resulting long RETRIEVE contains 83 items, with modules for reporting methods (A-D) and characteristics of values (E), for researchers planning and reporting child health valuation studies. The short RETRIEVE contains 14 items for decision-makers or researchers choosing value-sets. Applying the RETRIEVE checklists to relevant studies suggests feasibility. RETRIEVE has the potential to improve completeness in the reporting of preference-based values for child HRQOL outcomes and to improve assessment of preference-based value-sets.
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Filename: 23.01 The RETRIEVE checklist for studies reporting the elicitation of stated preferences.pdf
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