Sherborne, V. orcid.org/0000-0003-1106-765X, Tod, A. orcid.org/0000-0001-6336-3747 and Taylor, B. (2024) The psychological effects of mesothelioma in the UK military context from the carer’s perspective: a qualitative study. Illness, Crisis & Loss, 32 (2). pp. 171-191. ISSN 1054-1373
Abstract
Mesothelioma is an incurable asbestos-related cancer with a high symptom burden. Its long lead time means cases in the military context tend to be amongst veterans. Research into the lived experience of mesothelioma is sparse. Research shows British veterans and their families are likely to have particular needs accessing health services and support. This study explored the psychological effects of mesothelioma in the UK military context from the carer's perspective. It comprised a secondary data analysis of interview data plus semi-structured interviews with family carers of UK veterans with a mesothelioma diagnosis. Themes developed included ‘ Going the extra mile’; ‘Shifts in previously robust characteristics and roles’; and ‘Needing to know’. Military culture impacted both patients and carers, with participants reporting a reluctance to show weakness. Carers experienced guilt and traumatic stress symptoms. Moral injury was reported relating to carers’ interactions with the Ministry of Defence (MOD) and the National Health Service (NHS).
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © The Author(s) 2022. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
Keywords: | family caregivers; interpretative phenomenological analysis; mesothelioma; military; psychological |
Dates: |
|
Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) |
Funding Information: | Funder Grant number MESOTHELIOMA UK CHARITABLE TRUST UNSPECIFIED |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 04 Oct 2022 11:24 |
Last Modified: | 17 Jul 2024 09:42 |
Status: | Published |
Publisher: | SAGE Publications |
Refereed: | Yes |
Identification Number: | 10.1177/10541373221122964 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:191128 |