Ejegi-Memeh, S. orcid.org/0000-0002-9241-300X, Robertson, S. orcid.org/0000-0002-5683-363X, Taylor, B. et al. (2 more authors) (2021) Gender and the experiences of living with mesothelioma: a thematic analysis. European Journal of Oncology Nursing, 52. 101966. ISSN 1462-3889
Abstract
Purpose
Mesothelioma is a terminal cancer caused by exposure to asbestos. As a cancer with a higher rate in men than women, women's experiences of living with mesothelioma are often underexplored. Furthermore, men's experiences are often taken for granted and therefore have remained underexplored. This paper considers men's and women's experiences across the mesothelioma pathway.
Methods
This qualitative study incorporated semi-structured interviews with 13 men and 11 women living with mesothelioma. Telephone interviews took place between July and December 2019, and were audio recorded, transcribed and anonymised. Thematic analysis was used to analyse the data.
Results
Three themes were developed in relation to the gendered experience of mesothelioma: familial responsibility and social perceptions; support preferences; and treatment and trials. Analysis suggests that men and women's sense of familial responsibility varied. Differences in priorities and motivations influenced approaches to seeking support, compensation and, making decisions around treatments and clinical trials.
Conclusions
The current study reports on how gender can influence the experience of living with mesothelioma. The findings indicate how the patients' role in their families and society can more broadly influence their experiences, choices and preferences. Nurses caring for mesothelioma patients need high quality research on which to base their practice. Recognition and an understanding of the underlying factors influencing patients’ decision-making will enable nurses and other professionals to support their patients better.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
Keywords: | Gender; Mesothelioma; Men; Women; Qualitative; Thematic analysis |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) |
Funding Information: | Funder Grant number MESOTHELIOMA UK CHARITABLE TRUST nan |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 13 May 2021 12:45 |
Last Modified: | 13 May 2021 12:45 |
Status: | Published |
Publisher: | Elsevier |
Refereed: | Yes |
Identification Number: | 10.1016/j.ejon.2021.101966 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:174086 |