Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance

Mickute, G., Staley, K., Delaney, H. et al. (15 more authors) (2020) Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance. Orphanet Journal of Rare Diseases, 15 (1). 117. ISSN 1750-1172

Abstract

Metadata

Authors/Creators:
  • Mickute, G.
  • Staley, K.
  • Delaney, H.
  • Gardiner, O.
  • Hunter, A.
  • Keen, R.
  • Lockhart, L.
  • Meade, N.
  • Newman, M.
  • Ralston, S.
  • Rush, E.
  • Upadhyaya, S.
  • Regan, S.
  • Watts, L.
  • Walsh, J. ORCID logo https://orcid.org/0000-0002-7122-2650
  • White, P.
  • Francis, R.M.
  • Javaid, M.K.
Copyright, Publisher and Additional Information: © The Author(s). 2020. Open Access: This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
Keywords: James Lind Alliance; Priority setting partnership; Fibrous dysplasia/McCune-Albright syndrome; X-linked hypophosphatemia; Osteogenesis imperfecta; Rare musculoskeletal diseases; Research priorities; Patient and public involvement; Research mismatch
Dates:
  • Accepted: 4 May 2020
  • Published (online): 19 May 2020
  • Published: 19 May 2020
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Sheffield Teaching Hospitals
Depositing User: Symplectic Sheffield
Date Deposited: 16 Oct 2020 13:37
Last Modified: 16 Oct 2020 13:37
Status: Published
Publisher: Springer Science and Business Media LLC
Refereed: Yes
Identification Number: https://doi.org/10.1186/s13023-020-01398-5
Related URLs:

Share / Export

Statistics