Tuberous sclerosis complex (TSC) : expert recommendations for provision of coordinated care

Annear, N.M.P., Appleton, R.E., Bassi, Z. et al. (21 more authors) (2019) Tuberous sclerosis complex (TSC) : expert recommendations for provision of coordinated care. Frontiers in Neurology, 10. 1116.



  • Annear, N.M.P.
  • Appleton, R.E.
  • Bassi, Z.
  • Bhatt, R.
  • Bolton, P.F.
  • Crawford, P.
  • Crowe, A.
  • Tossi, M.
  • Elmslie, F.
  • Finlay, E.
  • Gale, D.P.
  • Henderson, A.
  • Jones, E.A.
  • Johnson, S.R.
  • Joss, S.
  • Kerecuk, L.
  • Lipkin, G.
  • Morrison, P.J.
  • O'Callaghan, F.J.
  • Cadwgan, J.
  • Ong, A.C.M. ORCID logo
  • Sampson, J.R.
  • Shepherd, C.
  • Kingswood, J.C.
Copyright, Publisher and Additional Information: © 2019 The Authors. This is an open-access article distributed under the terms of the Creative Commons Attribution License CC BY ( The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Keywords: tuberous sclerosis complex; service specification; commissioning; surveillance; guidelines; clinics; rare disease; United Kingdom
  • Accepted: 7 October 2019
  • Published: 6 November 2019
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Sheffield Teaching Hospitals
Depositing User: Symplectic Sheffield
Date Deposited: 19 Nov 2019 11:31
Last Modified: 19 Nov 2019 11:31
Status: Published
Publisher: Frontiers Media SA
Refereed: Yes
Identification Number:


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