Brownlee-Chapman, C, Chapman, R, Eardley, C et al. (13 more authors) (2018) Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history. International Journal of Heritage Studies, 24 (8). pp. 889-903. ISSN 1352-7258
Abstract
The Living Archive of Learning Disability History is being developed by an inclusive team of researchers both with and without learning disabilities. We argue the archive is important in making publicly visible the lives of people with learning disabilities. Yet – drawing on thinking that came out of our collaborative workshops – we also identify alternative imperatives, that you might want to have control over how you share your personal memories and stories, with whom, when you share them and for how long. We show how we are responding to these different ideas in the design of the Living Archive in order to create pathways between two traditions that have emerged through self-advocacy: ‘speaking out in public’ and ‘being person-centred’. We outline our research on consent processes to ensure that our archive builds capacity for as many people as possible to consent while also offering a legally compliant ‘Best Interests’ process in line with the requirements of the Mental Capacity Act, England and Wales (2005). We argue that deploying and actively navigating between the different political logics of ‘speaking out in public’ and ‘being person-centred’ offers a way forward for ongoing debates concerning community engagement in archives, museums and heritage.
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Copyright, Publisher and Additional Information: | © 2017 Chloe Brownlee-Chapman, Rohhss Chapman, Clarence Eardley, Sara Forster, Victoria Green, Helen Graham, Elizabeth Harkness, Kassie Headon, Pam Humphreys, Nigel Ingham, Sue Ledger, Val May, Andy Minnion, Row Richards, Liz Tilley and Lou Townson. Published with license by Informa UK Limited, trading as Taylor & Francis Group. This is an Accepted Manuscript of an article published by Taylor & Francis in International Journal of Heritage Studies on 15 Nov 2017, available online: http://www.tandfonline.com/10.1080/13527258.2017.1378901. Uploaded in accordance with the publisher's self-archiving policy. | ||||
Keywords: | Heritage; Archive; Learning Disability; Mental Capacity Act; Informed consent | ||||
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Institution: | The University of Leeds | ||||
Academic Units: | The University of Leeds > Faculty of Arts, Humanities and Cultures (Leeds) > Fine Art, History of Art & Cultural Studies (Leeds) | ||||
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Depositing User: | Symplectic Publications | ||||
Date Deposited: | 09 Oct 2017 11:14 | ||||
Last Modified: | 15 May 2019 00:40 | ||||
Status: | Published | ||||
Publisher: | Taylor & Francis | ||||
Identification Number: | https://doi.org/10.1080/13527258.2017.1378901 |