Providing Family-centred Care for Rare Diseases in Maternity Services: Parent Satisfaction and Preferences when Dysmelia is Identified

Johnson, J orcid.org/0000-0003-0431-013X, Adams-Spink, G, Arndt, T et al. (3 more authors) (2016) Providing Family-centred Care for Rare Diseases in Maternity Services: Parent Satisfaction and Preferences when Dysmelia is Identified. Women and Birth, 29 (6). e99-e104. ISSN 1871-5192

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Authors/Creators:
Copyright, Publisher and Additional Information: © 2016 Australian College of Midwives. This is an author produced version of a paper published in Women and Birth. Uploaded in accordance with the publisher's self-archiving policy.
Keywords: Family-centred care; Prenatal care; Maternity services; Dysmelia; Rare diseases
Dates:
  • Published: December 2016
  • Accepted: 13 April 2016
  • Published (online): 5 May 2016
Institution: The University of Leeds
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Psychology (Leeds)
Depositing User: Symplectic Publications
Date Deposited: 14 Apr 2016 11:26
Last Modified: 01 Jul 2017 22:22
Published Version: https://doi.org/10.1016/j.wombi.2016.04.007
Status: Published
Publisher: Elsevier
Identification Number: https://doi.org/10.1016/j.wombi.2016.04.007

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