Thompson, J. orcid.org/0000-0001-9256-1208, Bissell, P., Cooper, C.L. et al. (2 more authors) (2014) Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting. Qualitative Health Research, 24 (1). pp. 46-54. ISSN 1049-7323
Abstract
An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants’ practical contribution to enhancing research processes. By contrast, there has been less emphasis on the perspectives and experiences of those involved in PPI. Drawing on qualitative data with people involved in the National Cancer Research Network in the United Kingdom, we report on what motivated participants to get involved and their experiences of involvement in this setting. We highlight how those involved in PPI often espoused the notion of the “good citizen,” with PPI in research being a natural extension of their wider civic interests. However, our findings also highlight how PPI was an important resource, utilized by participants to make sense of living with chronic illness. We suggest that PPI in research also offers spaces for the reconfiguration of self and identity.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © The Author(s) 2013 This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(http://www.uk.sagepub.com/aboutus/openaccess.htm). |
Keywords: | illness and disease; experiences; interviews; lay concepts and practices; research participation |
Dates: |
|
Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Nursing and Midwifery (Sheffield) The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > ScHARR - Sheffield Centre for Health and Related Research The University of Sheffield > Sheffield Teaching Hospitals |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 13 Apr 2016 13:47 |
Last Modified: | 24 Oct 2018 08:15 |
Published Version: | http://dx.doi.org/10.1177/1049732313514482 |
Status: | Published |
Publisher: | SAGE Publications (UK and US) |
Refereed: | Yes |
Identification Number: | 10.1177/1049732313514482 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:93265 |
Download
Filename: Exploring the impact of patient and public involvement in a cancer research setting..pdf
Licence: CC-BY-NC 3.0