White Rose University Consortium logo
University of Leeds logo University of Sheffield logo York University logo

Living a 'Normal' Life: Young People Coping With Thalassaemia Major or Sickle Cell Disorder

Atkin, K.A. and Ahmad, W.I.U. (2001) Living a 'Normal' Life: Young People Coping With Thalassaemia Major or Sickle Cell Disorder. Social Science and Medicine, 53 (5). pp. 615-626. ISSN 0277-9536

Full text not available from this repository.


This qualitative paper explores the strategies and resources young people use to cope with sickle cell disorder or thalassaemia major, two haemoglobin disorders with serious implications for health and survival. By focusing on coping strategies, we explore how young people attempt to take control over their lives. The respondents, largely of South Asian and African Caribbean origin, aged between 10 and 19 years, valued maintaining a ‘normal’ life and struggled to achieve this normalcy. Strategies were employed to minimise difference from peers but these strategies remained vulnerable. Coping occurred in a dynamic space, involving negotiation and engagement with both personal and structural factors. Threats to normalcy did not always reside in the condition; life transitions, changes in social relationships and racist, disablist or sexist marginalisation also threatened coping strategies.

Item Type: Article
Institution: The University of York
Academic Units: The University of York > Health Sciences (York)
Depositing User: York RAE Import
Date Deposited: 17 Feb 2009 08:38
Last Modified: 17 Feb 2009 08:38
Published Version: http://dx.doi.org/10.1016/S0277-9536(00)00364-6
Status: Published
Publisher: Elsevier Science B.V., Amsterdam.
Identification Number: 10.1016/S0277-9536(00)00364-6
URI: http://eprints.whiterose.ac.uk/id/eprint/7548

Actions (repository staff only: login required)