White Rose University Consortium logo
University of Leeds logo University of Sheffield logo York University logo

Chronically Ill adolescents' experiences of communicating with doctors: a qualitative study

Beresford, B.A. and Sloper, P. (2003) Chronically Ill adolescents' experiences of communicating with doctors: a qualitative study. Journal of Adolescent Health, 33 (3). pp. 172-179. ISSN 1054-139X

Full text not available from this repository.

Abstract

PURPOSE

To explore the experiences of chronically ill adolescents in communicating with health professionals, including the identification of factors which hinder or facilitate their use of health professionals as an information source.

METHODS

63 adolescents (11–16 years) with a chronic condition (cystic fibrosis, diabetes, epilepsy, juvenile chronic arthritis, or Duchenne muscular dystrophy) were interviewed, and subsequently took part in two group discussion meetings with other adolescents of a similar age with the same condition. Data were analyzed using the framework method involving data reduction, data display, and conclusion-drawing and verification.

RESULTS

Factors affecting the openness and effectiveness of communication included: duration and frequency of contact; gender; perceived attitudes towards adolescents; the communication skills of the adolescent and health professional; and the presence of parents and medical students/trainee doctors. The type of information needed also affected whether the adolescents felt able to discuss an issue with a health professional. Adolescents were reluctant to raise personal or sensitive issues or to ask questions that revealed poor adherence. A perceived lack of interest in the wider impacts of having a chronic condition on day-to-day life was also a barrier to adolescents discussing difficulties at school and socio-emotional problems.

CONCLUSIONS

Communication and information provision are key roles for health professionals, yet this study highlights a population with potentially high levels of information need who are facing considerable barriers to addressing these needs. Steps taken to improve adolescent-health professional communication need to address a range of practical, attitudinal and behavioral factors.

Item Type: Article
Academic Units: The University of York > Social Policy Research Unit (York)
Depositing User: York RAE Import
Date Deposited: 08 May 2009 11:37
Last Modified: 08 May 2009 11:37
Published Version: http://dx.doi.org/10.1016/S1054-139X(03)00047-8
Status: Published
Publisher: Elsevier
Refereed: Yes
Identification Number: 10.1016/S1054-139X(03)00047-8
URI: http://eprints.whiterose.ac.uk/id/eprint/6462

Actions (login required)

View Item View Item