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Defining the outcomes of community care: the perspectives of older people with dementia and their carers

Bamford, C. and Bruce, E. (2000) Defining the outcomes of community care: the perspectives of older people with dementia and their carers. Ageing and Society. pp. 543-570. ISSN 1469-1779

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Abstract

There is growing recognition of the need for outcome measures which reflect the aims of services for people with dementia. The development and application of existing outcome measures has often marginalised people with dementia. ‘Experts’ and carers have been viewed as primary sources when identifying relevant outcomes or domains of quality of life, and proxy respondents have often been responsible for rating outcomes on the resulting measures. This paper reports a small consultation with people with dementia and their carers to identify the desired outcomes of community care. While there was considerable overlap in the outcomes identified by people with dementia and their carers, a number of limitations of relying solely on carers as proxy respondents were identified. A key outcome, which has been relatively neglected in previous work, was maximising a sense of autonomy. A range of outcomes related to the ways in which services are delivered were also identified. Future evaluative studies should encompass both quality-of-life outcomes and service-process outcomes (the impacts of the ways in which services are delivered) in addition to other outcome measures relevant to the aims and objectives of the service.

Item Type: Article
Copyright, Publisher and Additional Information: Copyright © 2000 Cambridge University Press
Keywords: dementia, outcomes, quality of life, proxy respondents
Academic Units: The University of York > Social Policy and Social Work (York)
Depositing User: Repository Officer
Date Deposited: 31 Aug 2005
Last Modified: 17 Oct 2013 14:37
Published Version: http://dx.doi.org/10.1017/S0144686X99007898
Status: Published
Refereed: Yes
Related URLs:
URI: http://eprints.whiterose.ac.uk/id/eprint/628

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