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Amplified ambivalence: having a sibling with juvenile idiopathic arthritis

Waite-Jones, J.M. and Madill, A. (2007) Amplified ambivalence: having a sibling with juvenile idiopathic arthritis. Psychology & Health. ISSN 1476-8321

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Abstract

Despite increased awareness of family responses to chronic illness and disability, there is still a need to understand experiences of well siblings. We begin to address this by asking “What is it like to have a sibling with juvenile idiopathic arthritis?” (JIA).Eight families with an adolescent diagnosed with JIA participated. Four members of each family, including one healthy sibling, were interviewed and transcripts analyzed using grounded theory. Analysis suggests healthy siblings see their family as different to ‘normal’ families, forfeit time with peers, share vicariously adverse experiences of their ill sibling, and feel inadequately informed. Such experiences amplify the ambivalent nature of sibling relationships and are possibly felt most strongly during late childhood and early adolescence. Support from extended family can reduce these negative experiences and facilitate social and emotional adjustment which also occurs over time as the children mature. These findings have implications for healthcare professionals and voluntary organizations.

Item Type: Article
Copyright, Publisher and Additional Information: 2007 Taylor & Francis. This is an electronic version of an article accepted for publication in Psychology & Health. Psychology & Health is available online at informaworld. Uploaded in accordance with the publisher's self-archiving policy.
Keywords: Siblings, Juvenile Idiopathic Arthritis, Family, Childhood Disability, Chronic illness, Qualitative research
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > Institute of Psychological Sciences (Leeds)
The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds)
Depositing User: Repository Officer
Date Deposited: 21 Jan 2008 14:35
Last Modified: 08 Feb 2013 17:05
Published Version: http://dx.doi.org/10.1080/14768320701299906
Status: Published
Publisher: Taylor and Francis
Refereed: Yes
Identification Number: 10.1080/14768320701299906
URI: http://eprints.whiterose.ac.uk/id/eprint/3577

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