Waite-Jones, J.M. and Madill, A. (2007) Amplified ambivalence: having a sibling with juvenile idiopathic arthritis. Psychology & Health. ISSN 1476-8321Full text available as:
Available under licence : See the attached licence file.
Despite increased awareness of family responses to chronic illness and disability, there is still a need to understand experiences of well siblings. We begin to address this by asking “What is it like to have a sibling with juvenile idiopathic arthritis?” (JIA).Eight families with an adolescent diagnosed with JIA participated. Four members of each family, including one healthy sibling, were interviewed and transcripts analyzed using grounded theory. Analysis suggests healthy siblings see their family as different to ‘normal’ families, forfeit time with peers, share vicariously adverse experiences of their ill sibling, and feel inadequately informed. Such experiences amplify the ambivalent nature of sibling relationships and are possibly felt most strongly during late childhood and early adolescence. Support from extended family can reduce these negative experiences and facilitate social and emotional adjustment which also occurs over time as the children mature. These findings have implications for healthcare professionals and voluntary organizations.
|Copyright, Publisher and Additional Information:||2007 Taylor & Francis. This is an electronic version of an article accepted for publication in Psychology & Health. Psychology & Health is available online at informaworld. Uploaded in accordance with the publisher's self-archiving policy.|
|Keywords:||Siblings, Juvenile Idiopathic Arthritis, Family, Childhood Disability, Chronic illness, Qualitative research|
|Institution:||The University of Leeds|
|Academic Units:||The University of Leeds > Faculty of Medicine and Health (Leeds) > Institute of Psychological Sciences (Leeds)
The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds)
|Depositing User:||Repository Officer|
|Date Deposited:||21 Jan 2008 14:35|
|Last Modified:||08 Feb 2013 17:05|
|Publisher:||Taylor and Francis|