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'I know how I feel': listening to young people with life-limiting conditions who have learning and communication impairments

Mitchell, W (orcid.org/0000-0002-1608-2368) (2010) 'I know how I feel': listening to young people with life-limiting conditions who have learning and communication impairments. Qualitative Social Work. pp. 185-203. ISSN 1741-3117

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UK government policy advocates involving children in decisions about their lives. However, disabled children are often marginalized and not consulted, especially those with learning and communication impairments. Drawing on an ongoing English Government funded longitudinal study exploring different groups of service users' choices, this article demonstrates the important contribution that qualitative research methods, especially non-traditional methods, can procure when working with young people who are non-verbal or have limited speech. Working with young people with life-limiting conditions raises some specific challenges for researchers. Here, adapting project wide materials and research methods in order to gain some thematic continuity across different service user groups. Some of these considerations and challenges will be discussed, especially the development of non-verbal forms of communication (talking matsTM). Practical experiences, both positive and negative will be examined. The article concludes by considering some wider implications of using symbols based methods for future research and how these methods can be used across disciplines and by practitioners in their everyday work.

Item Type: Article
Copyright, Publisher and Additional Information: © The Author 2010. Qualitative Social Work 2010, 9: 185 - originally published online 1 October 2009. This is an author produced version of the article published. This paper has been peer-reviewed but does not include the journal pagination.
Keywords: ill/disabled children,research methodologies,Social Sciences (miscellaneous),Health(social science)
Institution: The University of York
Academic Units: The University of York > Social Policy Research Unit (York)
Depositing User: R Pitman
Date Deposited: 20 Aug 2010 15:25
Last Modified: 22 Mar 2016 18:44
Published Version: http://dx.doi.org/10.1177/1473325009346460
Status: Published
Refereed: Yes
Related URLs:
URI: http://eprints.whiterose.ac.uk/id/eprint/11153

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