White Rose University Consortium logo
University of Leeds logo University of Sheffield logo York University logo

Working with children to develop dimensions for a preference-based, generic, pediatric, health-related quality-of-life measure

Stevens, K. (2010) Working with children to develop dimensions for a preference-based, generic, pediatric, health-related quality-of-life measure. Qualitative Health Research, 20 (3). pp. 340-351. ISSN 1049-7323

Full text not available from this repository. (Request a copy)

Abstract

Use of preference-based measures (PBM) of health-related quality of life (HRQoL) is increasing. PBMs allow the calculation of quality-adjusted life years, which can be used in decision making. Research in the field of pediatric PBMs is lacking. This work is the first stage in the development of a new generic, pediatric PBM of HRQoL. Seventy-four qualitative interviews were undertaken with children to find out how health affects their lives. Sampling was purposive, balancing primarily for health within age, with gender and ethnicity as secondary criteria. Interviews covered a wide range of health conditions, and children were successfully able to articulate how their health affected their lives. Eleven dimensions of HRQoL were identified, covering social, emotional, and physical aspects, in common with other generic pediatric HRQoL measures, but differ by including feeling jeal'ous and feeling tired/weak and not including dimensions related to parental, family, or behavioral issues.

Item Type: Article
Keywords: children; health, determinants of; health outcomes; quality of life; resource allocation
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > Health Economics and Decision Science
Depositing User: Miss Anthea Tucker
Date Deposited: 24 May 2010 09:45
Last Modified: 07 Jun 2010 08:32
Published Version: http://dx.doi.org/10.1177/1049732309358328
Status: Published
Publisher: SAGE Publications
Identification Number: 10.1177/1049732309358328
URI: http://eprints.whiterose.ac.uk/id/eprint/10842

Actions (repository staff only: login required)