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Developing a descriptive system for a new preference-based measure of health-related quality of life for children

Stevens, K. (2009) Developing a descriptive system for a new preference-based measure of health-related quality of life for children. Quality of Life Research, 18 (8). pp. 1105-1113. ISSN 0962-9343

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The use of preference-based measures (PBMs) of health-related quality of life (HRQoL) is increasing in health care resource allocation decisions. Whilst there are measures widely used for this purpose in adults, research in the paediatric field is more limited. This paper reports on how the descriptive system for a new paediatric generic PBM of HRQoL was developed from dimensions identified in previous research.

Existing scales from the paediatric literature were reviewed for suitability, and scales were also developed empirically, based on qualitative interview data from children, by taking adverbial phrases and confirming the ordinality by a ranking exercise with children. The resulting scales were applied to the dimensions from the previous research.

No suitable scales were found in the paediatric literature, so the empirically derived scales were used resulting in seven different types. Children were successfully able to rank these to determine the ordinality, and these types were applied to the dimensions.

This work has empirically developed a descriptive system for the dimensions of HRQoL identified in previous research. Further research is needed to test the descriptive system on a paediatric population and reduce the number of dimensions to be amenable to health state valuation.

Item Type: Article
Copyright, Publisher and Additional Information: © 2009 Springer. This is an author produced version of a paper subsequently published in Quality of Life Research. Uploaded in accordance with the publisher's self-archiving policy.
Keywords: Health care rationing; Paediatrics; Quality-adjusted life years; Quality of life
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > Health Economics and Decision Science
Depositing User: Miss Anthea Tucker
Date Deposited: 24 May 2010 09:38
Last Modified: 08 Feb 2013 17:00
Published Version: http://dx.doi.org/10.1007/s11136-009-9524-9
Status: Published
Publisher: Springer
Refereed: Yes
Identification Number: 10.1007/s11136-009-9524-9
URI: http://eprints.whiterose.ac.uk/id/eprint/10841

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