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Estimated prevalence of people with learning disabilities: template for general practice

Allgar, V., Mir, G., Evans, J., Marshall, J., Cottrell, D., Heywood, P. and Emerson, E. (2008) Estimated prevalence of people with learning disabilities: template for general practice. British Journal of General Practice (BJGP), 58 (551). pp. 423-428. ISSN 1478-5242

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BACKGROUND In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004.

AIM To outline the development of a template to create practice-based registers of people with learning disabilities in general practice.

DESIGN OF STUDY The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population.

SETTING General practices in Leeds.

METHOD A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability.

RESULTS The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4% of the practice population. Combined with validation from the city-wide database, this increased to 0.7%.

CONCLUSION The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices

Item Type: Article
Copyright, Publisher and Additional Information: © 2008 Royal College of General Practitioners. Reproduced with permission from the copyright holder.
Institution: The University of Leeds
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Leeds Institute of Health & Social Work
Depositing User: Sherpa Assistant
Date Deposited: 25 Mar 2010 12:19
Last Modified: 15 Sep 2014 04:07
Published Version: http://dx.doi.org/10.3399/bjgp08X299272
Status: Published
Publisher: Royal College of General Practitioners
Identification Number: 10.3399/bjgp08X299272
URI: http://eprints.whiterose.ac.uk/id/eprint/10720

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