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What progress has been made towards implementing national guidance on end of life care? A national survey of UK general practices

Hughes, P.M., Bath, P.A., Ahmed, N. and Noble, B. (2010) What progress has been made towards implementing national guidance on end of life care? A national survey of UK general practices. Palliative Medicine, 24 (1). pp. 68-78. ISSN 0269-2163

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Abstract

The objectives of this study were to establish the extent to which UK primary care has adopted recommended practices on supportive and palliative care of adults with cancer, and to relate this to participation in national initiatives. We conducted a cross-sectional postal questionnaire survey of a random sample of UK general practices. In total, 60.0% of practices (2096 of 3495) responded to the survey: 61.5% reported involvement with the Gold Standards Framework (GSF); 24.4% with the Liverpool or other End of Life Care Pathway; 12.3%, with the Preferred Place of Care (PPC) initiative; and 8.4% with Advance Care Planning (ACP). Participation in GSF contributed most to the variance in practice organization scores; and practice organization scores contributed most to the variance in clinical care scores. Participation in ACP or PPC, and higher clinical care scores were associated with an increased likelihood of reported high rates of death at home for cancer patients. Our findings appear to support the role of national initiatives in improving the quality of end-of-life care delivery in general practice. A population-based study would be required to assess the effect of end of life care on clinical outcomes and patient or carer experience.

Item Type: Article
Keywords: End-of-life care; UK general practice; national guidance on supportive and palliative care; palliative care; Gold Standards Framework; questionnaire survey
Academic Units: The University of Sheffield > Faculty of Social Sciences (Sheffield) > Information School (Sheffield)
Depositing User: Miss Anthea Tucker
Date Deposited: 26 Feb 2010 10:54
Last Modified: 26 Feb 2010 10:54
Published Version: http://dx.doi.org/10.1177/0269216309346591
Status: Published
Publisher: Sage
Identification Number: 10.1177/0269216309346591
URI: http://eprints.whiterose.ac.uk/id/eprint/10440

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