My Life : Growing up and living with Ataxia-Telangiectasia: young people's and young adults' experiences

The A-T Society was seeking to understand more about the lives of young people, their priorities and aspirations, and what got in the way of them living the lives that they want to live. The Society also wanted to know young people's views about the support and services it provided to young people with A-T and their families.The key purpose of the project was to hear and give a voice to, the experiences of young people with A-T. Their views and experiences are prioritised in this report.