Investigating the beneficial experiences of online peer support for those affected by alopecia: An interpretative phenomenological analysis using online interviews

BACKGROUND: Those affected by alopecia are at risk of experiencing a range of psychosocial consequences. Alopecia UK provide online peer support via facilitated Facebook pages. Online peer support has been found to provide a variety of benefits in other long term conditions, such as providing information and emotional support. OBJECTIVES: This study sought to gain an experiential account as to how online support provides benefit to people living with alopecia. METHODS: A purposive sample of 12 participants was recruited directly from Alopecia UK's Facebook group. A total of 11 were diagnosed with alopecia and 1 participant was a family member of someone with alopecia. The qualitative approach used to guide data collection and analysis was Interpretative Phenomenological Analysis. Participants took part in online synchronous interviews, which drew on review of participant-selected screenshots of online activity. RESULTS: Four themes were identified, including 'Gradual Healing', 'Image Concern', 'Belonging', and 'New Identity and Self-Acceptance'. The participants made use of the group through expressing emotion, finding practical advice, and also as a place to connect and share experiences. Participants also reported that the online support facilitated the return of social confidence. CONCLUSIONS: This study provides a detailed understanding as to how online peer support groups can be beneficial. Online groups have the potential to create a feeling of belonging, that can develop a sense of being accepted and understood and as such can be important in maintaining psychological well-being. The findings indicate that online groups have the potential to be used as a platform for assisting people in developing both effective coping styles and feeling understood, and such platforms warrant further investment by healthcare professionals.