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Article

Absolom, K orcid.org/0000-0002-5477-6643, Gibson, A and Velikova, G orcid.org/0000-0003-1899-5942 (2019) Engaging patients and clinicians in online reporting of adverse effects during chemotherapy for cancer. The eRAPID system (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice). Medical Care, 57 (5 Supplement 1). s59-s65. ISSN 0025-7079

Avery, KNL, Richards, HS, Portal, A et al. (8 more authors) (2019) Developing a real-time electronic symptom monitoring system for patients after discharge following cancer-related surgery. BMC Cancer, 19. 463. ISSN 1471-2407

Boele, FW orcid.org/0000-0003-0409-7949, Rooney, AG, Bulbeck, H et al. (1 more author) (2019) Interventions to help support caregivers of people with a brain or spinal cord tumour. Cochrane Database of Systematic Reviews, 2019 (7). CD012582. ISSN 1469-493X

Bottomley, A, Pe, M, Sloan, J et al. (38 more authors) (2018) Moving forward toward standardizing analysis of quality of life data in randomized cancer clinical trials. Clinical Trials, 15 (6). pp. 624-630. ISSN 1740-7745

Bright, CJ, Reulen, RC, Winter, DL et al. (5 more authors) (2019) Risk of subsequent primary neoplasms in survivors of adolescent and young adult cancer (Teenage and Young Adult Cancer Survivor Study): a population-based, cohort study. The Lancet Oncology, 20 (4). pp. 531-545. ISSN 1470-2045

Cairns, A, Battleday, FM, Velikova, G orcid.org/0000-0003-1899-5942 et al. (6 more authors) (2020) General patient satisfaction after elective and acute thoracic surgery is associated with postoperative complications. Journal of Thoracic Disease, 12 (5). pp. 2088-2095. ISSN 2072-1439

Downing, A orcid.org/0000-0002-0335-7801, Wright, P orcid.org/0000-0001-6129-4143, Hounsome, L et al. (23 more authors) (2019) Quality of life in men living with advanced and localised prostate cancer in the UK: a population-based study. Lancet Oncology, 20 (3). pp. 436-447. ISSN 1470-2045

Gensheimer, SG, Wu, AW, Snyder, CF et al. (2 more authors) (2018) Oh, the Places We’ll Go: Patient-Reported Outcomes and Electronic Health Records. The Patient - Patient-Centered Outcomes Research, 11 (6). pp. 591-598. ISSN 1178-1653

Harley, C orcid.org/0000-0002-8800-4238, Adams, J, Booth, L et al. (3 more authors) (2009) Patient Experiences of Continuity of Cancer Care: Development of a new Medical Care Questionnaire (MCQ) for Oncology Outpatients. Value in Health, 12 (8). pp. 1180-1186. ISSN 1098-3015

Holch, P, Warrington, L orcid.org/0000-0002-8389-6134, Potrata, B et al. (8 more authors) (2016) Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients. Acta Oncologica, 55 (9-10). pp. 1220-1226. ISSN 0284-186X

Jackson, C, Cheater, FM, Harrison, W orcid.org/0000-0003-1180-8112 et al. (4 more authors) (2011) Randomised cluster trial to support informed parental decision-making for the MMR vaccine. BMC Public Health, 11. ARTN 475. ISSN 1471-2458

Kennedy, F orcid.org/0000-0002-4910-2505, Harcourt, D, Rumsey, N et al. (1 more author) (2010) The psychosocial impact of ductal carcinoma in situ (DCIS): A longitudinal prospective study. Breast, 19 (5). pp. 382-387. ISSN 0960-9776

King, MT, Costa, DSJ, Aaronson, NK et al. (12 more authors) (2016) QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30. Quality of Life Research, 25 (3). pp. 625-636. ISSN 0962-9343

Li, CK, Dalvi, R, Yonemori, K et al. (15 more authors) (2019) Care of adolescents and young adults with cancer in Asia: results of an ESMO/SIOPE/SIOP Asia survey. ESMO Open, 4 (3). UNSP e000467. ISSN 2059-7029

Lindner, OC orcid.org/0000-0001-5442-8393, McCabe, MG, Boele, F orcid.org/0000-0003-0409-7949 et al. (4 more authors) (2019) Discussing factors associated with quality of life in cancer follow-up appointments: a preliminary test of a pragmatic model for clinical practice. Clinical Rehabilitation, 33 (4). pp. 762-772. ISSN 0269-2155

Lindner, OC orcid.org/0000-0001-5442-8393, Velikova, G orcid.org/0000-0003-1899-5942 and Stark, DP orcid.org/0000-0002-6172-733X (2019) Digitally enabled patient-reported outcome measures in cancer care. The Lancet Oncology, 20 (1). e2-e2. ISSN 1470-2045

Mahmoodi, N, Bekker, HL orcid.org/0000-0003-1978-5795, King, NV orcid.org/0000-0002-4215-2323 et al. (2 more authors) (2018) Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan? BMC Medical Informatics and Decision Making, 18 (1). ARTN 104. ISSN 1472-6947

Marsh, C, Peacock, R orcid.org/0000-0002-0407-5339, Sheard, L et al. (2 more authors) (2019) Patient experience feedback in UK hospitals: What types are available and what are their potential roles in quality improvement (QI)? Health Expectations, 22 (3). pp. 317-326. ISSN 1369-6513

Musoro, JZ, Coens, C, Frederic, F et al. (9 more authors) (2019) Minimally important differences for interpreting EORTC QLQ-C30 scores in patients with advanced breast cancer. JNCI: Journal of the National Cancer Institute, 3 (3). pkz037. ISSN 0027-8874

Nicklin, E orcid.org/0000-0002-6683-8098, Velikova, G orcid.org/0000-0003-1899-5942, Hulme, C orcid.org/0000-0003-2077-0419 et al. (4 more authors) (2019) Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psycho-Oncology, 28 (3). pp. 477-487. ISSN 1057-9249

Pini, S, Hugh-Jones, S orcid.org/0000-0002-5307-1203, Shearsmith, L et al. (1 more author) (2019) ‘What are you crying for? I don’t even know you’ – The experiences of teenagers communicating with their peers when returning to school. European Journal of Oncology Nursing, 39. pp. 28-34. ISSN 1462-3889

Pompili, C and Absolom, K orcid.org/0000-0002-5477-6643 (2017) Prospective study of quality of life after lung cancer resection: using patient reported outcomes to assess the patient’s voice. Video-Assisted Thoracic Surgery, 2 (9). ISSN 2519-0792

Pompili, C orcid.org/0000-0001-6746-5441, Absolom, K orcid.org/0000-0002-5477-6643, Franks, K et al. (1 more author) (2018) Are quality of life outcomes comparable following stereotactic radiotherapy and minimally invasive surgery for stage I lung cancer patients? Journal of Thoracic Disease, 10 (12). pp. 7055-7063. ISSN 2072-1439

Retzer, A, Keeley, T, Ahmed, K et al. (16 more authors) (2018) Evaluation of patient-reported outcome protocol content and reporting in UK cancer clinical trials: the EPiC study qualitative protocol. BMJ Open, 8 (2). e017282. ISSN 2044-6055

Sheard, L, Peacock, R orcid.org/0000-0002-0407-5339, Marsh, C et al. (1 more author) (2019) What's the problem with patient experience feedback? A macro and micro understanding, based on findings from a three‐site UK qualitative study. Health Expectations, 22 (1). pp. 46-53. ISSN 1369-6513

Smith, AB, Wright, EP orcid.org/0000-0001-6129-4143, Selby, PJ et al. (1 more author) (2007) A Rasch and factor analysis of the Functional Assessment of Cancer Therapy-General (FACT-G). Health and Quality of Life Outcomes, 5 (19). 5 - 19. ISSN 1477-7525

Snyder, C, Smith, K, Holzner, B et al. (4 more authors) (2019) Making a picture worth a thousand numbers: recommendations for graphically displaying patient-reported outcomes data. Quality of Life Research, 28 (2). pp. 345-356. ISSN 0962-9343

Stark, D orcid.org/0000-0002-6172-733X, Fern, LA, Gibson, F et al. (4 more authors) (2018) Transitioning adolescent and young adult cancer care research out of its adolescence. European Journal of Cancer Care, 27 (6). e12962. ISSN 0961-5423

Thanarajasingam, G, Minasian, LM, Baron, F et al. (37 more authors) (2018) Beyond maximum grade: modernising the assessment and reporting of adverse events in haematological malignancies. The Lancet Haematology, 5 (11). e563-e598. ISSN 2352-3026

Velikova, G orcid.org/0000-0003-1899-5942, Williams, LJ, Willis, S et al. (7 more authors) (2018) Quality of life after postmastectomy radiotherapy in patients with intermediate-risk breast cancer (SUPREMO): 2-year follow-up results of a randomised controlled trial. The Lancet Oncology, 19 (11). pp. 1516-1529. ISSN 1470-2045

Warrington, L orcid.org/0000-0002-8389-6134, Absolom, K orcid.org/0000-0002-5477-6643, Conner, M orcid.org/0000-0002-6229-8143 et al. (4 more authors) (2019) Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review. Journal of Medical Internet Research, 21 (1). e10875. ISSN 1439-4456

Warrington, L orcid.org/0000-0002-8389-6134, Absolom, K orcid.org/0000-0002-5477-6643, Holch, P et al. (3 more authors) (2019) Online tool for monitoring adverse events in patients with cancer during treatment (eRAPID): field testing in a clinical setting. BMJ Open, 9 (1). e025185. ISSN 2044-6055

Conference or Workshop Item

Stamp, E orcid.org/0000-0002-5106-0033, Clarke, G, Velikova, G orcid.org/0000-0003-1899-5942 et al. (3 more authors) (2019) Using the "Word-Wall" as a method to identify research priorities in cancer survivorship. In: British Psychosocial Oncology Society Annual Conference, 28 Feb - 01 Mar 2019, Chester, UK.

Proceedings Paper

Dalvi, R, Li, C-K, Yonemori, K et al. (15 more authors) (2018) Adolescents and young adults with cancer care in Asia: The joint ESMO/SIOPE/SIOP ASIA survey. In: Annals of Oncology. ESMO Asia Congress, 23-25 Nov 2018, Singapore. Oxford University Press , p. 121.

Gilbert, A, Davidson, S, Velikova, G orcid.org/0000-0003-1899-5942 et al. (1 more author) (2017) SP-0519: Collecting PROs in clinical practice to assess radiotherapy toxicity and develop normal tissue complication probability models. In: Radiotherapy and Oncology. ESTRO 36, 05-09 May 2017, Vienna, Austria. Elsevier , S275-S275.

Glaser, A, Downing, A orcid.org/0000-0002-0335-7801, Wright, P orcid.org/0000-0001-6129-4143 et al. (17 more authors) (2018) Life after prostate cancer diagnosis: One step beyond. In: Journal of Clinical Oncology. 2018 Genitourinary Cancers Symposium, 08-10 Feb 2018, San Fransisco, USA. American Society of Clinical Oncology , p. 40.

Jones, GL, Vogt, K, Darby, F et al. (14 more authors) (2018) Experience of developing and evaluating a fertility preservation patient decision aid for teenage and adult women with cancer for use in oncology settings, UK (The Cancer, Fertility and Me study). In: Psycho-Oncology. 20th World Congress of Psycho‐Oncology, 29 Oct - 02 Nov 2018, Hong Kong. John Wiley & Sons Inc. , p. 45.

Peacock, R orcid.org/0000-0002-0407-5339, Holmes, M, Absolom, K orcid.org/0000-0002-5477-6643 et al. (6 more authors) (2019) "I would say the worst of it for me was the emotional side-effect" Patients' views of electronic symptom monitoring during chemotherapy. In: Psycho‐Oncology. British Psychosocial Oncology Society Annual Conference, 28 Feb - 01 Mar 2019, Chester, UK. Wiley , p. 14.