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Financial effects for families of the death of a disabled or chronically ill child: a neglected area of bereavement

Corden, A., Sloper, P. and Sainsbury, R. (2002) Financial effects for families of the death of a disabled or chronically ill child: a neglected area of bereavement. Child: care, health and development, 28 (3). pp. 199-204. ISSN 0305-1862

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Abstract

AIM

To investigate the financial circumstances of families whose child had died after a long-term illness and the factors contributing to financial difficulties.

RESEARCH METHODS

Qualitative exploration involved semi-structured interviews with a purposive sample of 16 families whose child had died in the last 2 years and who were in touch with a children's hospice.

RESULTS

All parents were affected by loss of or reduction in social security benefits. This could result in an immediate drop in income of as much as 72%. Paying for funerals and headstones could be hard. Financial problems after the child's death often had origins in the period of care, when parents had reduced incomes but faced extra costs of care. Some families had got into debt. Re-engaging with employment could be a slow process, and it was not clear where professional responsibility lay in providing financial advice and support. Insensitive treatment by administrative agencies increased problems for parents.

DISCUSSION

Findings provide further evidence of the financial impact for families of caring for severely disabled children. This study shows how this impact can extend far into the period after death. Findings indicate the need for financial advice and support to families both during the period of care and after bereavement.

Item Type: Article
Institution: The University of York
Academic Units: The University of York > Social Policy Research Unit (York)
Depositing User: York RAE Import
Date Deposited: 12 Jun 2009 15:01
Last Modified: 12 Jun 2009 15:01
Published Version: http://dx.doi.org/10.1046/j.1365-2214.2002.00267.x
Status: Published
Publisher: Blackwell Publishing
Identification Number: 10.1046/j.1365-2214.2002.00267.x
URI: http://eprints.whiterose.ac.uk/id/eprint/5854

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