Development of a new quality of life measure for Duchenne muscular dystrophy using mixed methods

Powell, P.A. orcid.org/0000-0003-1169-3431, Carlton, J. orcid.org/0000-0002-9373-7663, Rowen, D. orcid.org/0000-0003-3018-5109 et al. (3 more authors) (2021) Development of a new quality of life measure for Duchenne muscular dystrophy using mixed methods. Neurology, 96 (19). e2438-e2450. ISSN 0028-3878

Abstract

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Authors/Creators:
Copyright, Publisher and Additional Information: © 2021 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology. This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License 4.0 (CC BY-NC-ND), http://creativecommons.org/licenses/by-nc-nd/4.0/ which permits downloading and sharing the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
Keywords: Duchenne muscular dystrophy; patient reported outcomes; quality of life; questionnaire development; content validity
Dates:
  • Accepted: 12 February 2021
  • Published (online): 30 March 2021
  • Published: 11 May 2021
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > ScHARR - Sheffield Centre for Health and Related Research
Depositing User: Symplectic Sheffield
Date Deposited: 01 Apr 2021 16:48
Last Modified: 25 May 2021 12:15
Status: Published
Publisher: Ovid Technologies (Wolters Kluwer Health)
Refereed: Yes
Identification Number: https://doi.org/10.1212/wnl.0000000000011896

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