Parent Experiences and Preferences when Dysemlia is Identified During the Prenatal and Perinatal Periods: A Qualitative Study into Family Nursing Care for Rare Diseases

Johnson, J orcid.org/0000-0003-0431-013X, Johnson, O, Heyhoe, J et al. (2 more authors) (2018) Parent Experiences and Preferences when Dysemlia is Identified During the Prenatal and Perinatal Periods: A Qualitative Study into Family Nursing Care for Rare Diseases. Journal of Family Nursing, 24 (2). pp. 271-293. ISSN 1074-8407

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Authors/Creators:
Copyright, Publisher and Additional Information: Johnson, J , Johnson, O, Heyhoe, J et al. (2 more authors) (2018) Parent Experiences and Preferences when Dysemlia is Identified During the Prenatal and Perinatal Periods: A Qualitative Study into Family Nursing Care for Rare Diseases. Journal of Family Nursing, 24 (2). pp. 271-293. © The Author(s) 2018. Reprinted by permission of SAGE publications. The published version can be found at: https://doi.org/10.1177/1074840718772808
Keywords: family-centred care; communication; rare diseases; parents; family nursing; dysmelia
Dates:
  • Published: May 2018
  • Accepted: 28 January 2018
  • Published (online): 16 May 2018
Institution: The University of Leeds
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Psychology (Leeds)
Depositing User: Symplectic Publications
Date Deposited: 30 Apr 2018 10:49
Last Modified: 14 Jun 2018 03:21
Status: Published
Publisher: SAGE Publications
Identification Number: https://doi.org/10.1177/1074840718772808

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