Purpose: This study explored expectations and experiences of employment amongst young people with JIAjuvenile idiopathic arthritis, and the role of health professionals in promoting positive employment outcomes. Methods: Semi-structured interviews (n=13) and three focus groups (n=9,n=4,n=3) were conducted with young people (16-25y) and adults (26-31y) with juvenile idiopathic arthritis JIA and semi-structured interviews (n=9) were conducted with health professionals. Transcripts were analysed thematically. Results: Young people with juvenile idiopathic arthritisJIA have concerns about employers’ attitudes towards employees with long-term health conditions and lack knowledge of antidiscrimination legislation. Young people not in education, employment or training identify arthritisJIA as a key barrier. Challenges associated with JIA arthritis (e.g. pain, psychological distress) may not be visible to employers. Decisions about disclosing arthritisJIA are challenging and cause anxiety. Young people associate good disease management and access to flexible and convenient care with their capacity to succeed in employment. Psycho-social and vocational interventions have benefited some young people, but are not routinely available. Conclusions: Low expectations of employers may affect young people’s decisions about disclosure and seeking appropriate support in the work place. Health professionals can equip young people with knowledge and skills to negotiate appropriate support, through signposting to Young people, employment and arthritis. 2 anti-discrimination information and offering practice of transferable skills such as disclosure in consultations.
CORE (COnnecting REpositories)
CORE (COnnecting REpositories)