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Drugs for exceptionally rare diseases: a commentary on Hughes et al

McCabe, C., Tsuchiya, A., Claxton, K. and Raftery, J. (2006) Drugs for exceptionally rare diseases: a commentary on Hughes et al. Discussion Paper. (Unpublished)


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Recently in this journal, Hughes and colleagues discussed special funding status to ultra-orphan drugs. They concluded that there should be a uniform policy for the provision of orphan drugs across Europe; that complete restriction was impractical, and that UK policy should aspire to the values of the EU directive on orphan drugs. We critically assess these arguments, demonstrating that they failed to justify special status for treatments for rare diseases.

Item Type: Monograph (Discussion Paper)
Institution: The University of York, The University of Sheffield
Academic Units: The University of York > Centre for Health Economics (York)
The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > Health Economics and Decision Science > HEDS Discussion Paper Series
Depositing User: ScHARR / HEDS (Sheffield)
Date Deposited: 23 Jun 2010 14:12
Last Modified: 10 Jun 2014 10:07
Status: Unpublished
Identification Number: HEDS Discussion Paper 06/02
URI: http://eprints.whiterose.ac.uk/id/eprint/10932

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