The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases

Javaid, M.K., Forestier-Zhang, L., Watts, L. et al. (15 more authors) (2016) The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases. Orphanet Journal of Rare Diseases, 11 (1). 150. ISSN 1750-1172

Abstract

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Authors/Creators:
  • Javaid, M.K.
  • Forestier-Zhang, L.
  • Watts, L.
  • Turner, A.
  • Ponte, C.
  • Teare, H.
  • Gray, D.
  • Gray, N.
  • Popert, R.
  • Hogg, J.
  • Barrett, J.
  • Pinedo-Villanueva, R.
  • Cooper, C.
  • Eastell, R.
  • Bishop, N. https://orcid.org/0000-0001-7263-8546
  • Luqmani, R.
  • Wordsworth, P.
  • Kaye, J.
Copyright, Publisher and Additional Information: © The Author(s). 2016 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Keywords: Database management systems; Dynamic consent; Patient reported outcome measures; Rare diseases
Dates:
  • Published: 8 November 2016
  • Accepted: 21 October 2015
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine (Sheffield) > Division of Genomic Medicine (Sheffield) > Department of Oncology (Sheffield)
Depositing User: Symplectic Sheffield
Date Deposited: 21 Nov 2016 10:09
Last Modified: 21 Nov 2016 10:09
Published Version: http://dx.doi.org/10.1186/s13023-016-0528-6
Status: Published
Publisher: BioMed Central
Refereed: Yes
Identification Number: https://doi.org/10.1186/s13023-016-0528-6
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